Tuesday, February 23, 2010

Health Update February 2010!

Okay, I don't quite remember how long it has been since the last time I did a health update on myself. Hmmmm! That is a good question. But anyway's here it goes. Better late than never, right?

So here it is. Last month I went to my De Pere appointment went good. My doctor said he wanted to have me keep doing the Iv Ig once every month. I said well is it going to be 4 1/2 hours or less. He said he has no clue. He said that there is no actual dosage level or course of treatment to follow. So me being me says the following "So pretty much it is a crap shoot." He said bascially yes, and he smiled. I am so happy when I can make him smile. See he is the kind of guy who takes his job very seriously, but once you break through his surface like I have. You can joke around with him, and make him smile. See he has been with me since my very first transplant from my brother. He actually assisted in my surgery. Which I think is cool, then he was my clinic doctor (cool again), then after this transplant I had another lady who took care of me. Then my doctor got another job and I got the doctor that I have now. I got him back.

Okay now I really do have a point. Sorry went a little off track. Anywho, I have been doing my Iv treatment once a month, it lasts me about an hour and a half provided they don't set me too long like last time. My biopsy about a month or so ago, I don't remember when it was, showed no change in the rejection. Same as the last biopsy. Which is good. My numbers have been a little high, but I am pushing the water and trying not to drink too much soda. I have been lately though drinking more caffinated beverages than I should. I am trying to get energy or just to stay awake for a while longer than my body wants to. See I am Iron Defficient which means I am anemic and have no energy. I am hoping that if I keep taking my Iron Supplements, my iron level will come back up. But who knows. It is slowly getting a little better. Not as tired as I was last week, but still tired. I just need to go to sleep at a normal time instead of after midnight. Then I won't sleep until like 11 or noon. But I am learning, FINALLY, to listen to my body.

Here is a glimpse into how I used to do things. I would run and run and run being really busy without sitting down, and taking a rest. Then as I would do that, I would burn myself out. Were I would get sick and then energy get back up, and do it all over again. It was a vicious (sp?) cycle that I have been doing in the past. Now I am finally hoping that I got a hold on this. I am listening to my body when it says to not do anything and just sit and relax. I mean doing nothing at night is okay. I can put up with a little boredom.

Today I got my labs done. This week compared to 2 weeks ago all is getting better. Numbers are getting lower and getting better. All is good. And back on the road to normal. Whatever that is? Right? ;) Now be nice ladies. I know I am not normal. Not many people are. Right? Well, that is about it for now! Until next time! Talk to you soon!

Jodes

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